Struggles and Resources

 Here is a list of common struggles and phases we may go through as parents of a kid on the spectrum.

Eating habits

How they worry the parents and how it fits in with your Dr Visits and check ups

Toileting-

   Bathroom training and hygiene and how long it can take

Speech and communication (Verbal or non)

Communication tablets 

Baby Sign language is an option.

The frustration and emotional struggles

School aged- IEP-

         Will your child be ready for school?

         What is IEP?

Types of therapies

        Speech and language

        Occupational

        Physical

Types of basic needs

CLTS/DHS certified

Do you want us to advocate on your behalf or be third party?

     Enrollment

     Application help for medicaid or Katie Beckett

     Advocate services

Sensory items that can be useful Indoor and outdoor

Advice on proving the need and addressing you request to the Dr. 

     Swings (Indoor)

     Trampolines

     Pools

     Crash pads

     Large building blocks

     Bosu,  and peanut Balls

     Soft textures (Teddy bears , blankets etc.)

     Small slides or swings

Sensory places to play

Sensory Zone and thier respite services

Security CLTS covered services(Fences if they run away)

     Angel Sense devices

     Home modifications (approved by CLTS)

     Owl Support Services Door sensors

          How the mind of a kid with ASD works

There are things that you may or may not go through depending on the level of care you child needs. For example, they may not eat what or how you want them to. You may want them to go to bathroom like a neurotypical child. Every family is different so your child may want one thing and that is only thing and they have a meltdown.

             The mind of a child with ASD is unique. A child on the spectrum can be laser focused.

 There are ways to help them curb their thinking open their communication. Types of therapy, ABA therapy is one my child did and I am so glad he did. He used words like “I only like this on this day”.

         We as parents went through ABA training so we could do some of the same things as they Behavioral Technicians. That is very helpful to understand your little one’s mind. Our child is 6 and is still not ‘potty’ trained. We give him love and support. We give him everything he needs with the resources that are available to us in Dane County. We cry and secretly yell. We pray for our son to listen to us but he is our son and we love him. 

      We know we are not alone because we have friends, family, and resources. We are quite blessed and so are you.